Long Term Neurodevelopmental Follow Up Group
The group is responsible for developing a consistent method of monitoring long term follow up and analysing the data collected across the Network. This page contains all the various documents and papers of the Follow Up Group, including; agendas and minutes of meetings, reports, presentations, etc. As well as links to external national documents of interest to the Group.
Terms of Reference (Revised July 2018, due for review July 2021)
Meetings of the Group are held tri-annually. Details of the date, time and venue of the next meeting can be found on the event page. If you would like to receive notification of network events by e-mail, you can register to be a member of the Staffordshire, Shropshire and Black Country Newborn Network by clicking on the JOIN THIS NETWORK button at the bottom of our home page.
Letter and Form for Babies Born Out of Region
Long Term Neurodevelopmental Assessment Data Collection Form (duplicate of Badger dataset)
Follow Up Assessment Parent Information Leaflet (Updated Nov 2017)
Explanation of Follow Up Assessment Scores Parent Information Leaflet (Updated Nov 2017)
6 February 2019
Notes of the 7 November, see below.
SaTH Audit of Two Year Follow Up
7 November 2018
Notes of the 4 July 2018, see below.
Template for Audit of Compliance
4 July 2018
Notes of the 16 May 2018, see below.
MDT involvement in two year surveillance assessment Letter
Final Draft Network Follow Up Guideline
Previous Terms of Reference and Objectives, for update/review.
16 May 2018
Notes of the 16 November 2017, see below.
Previous Terms of Reference and Objectives, for update/review.
Draft Network Guideline and Issues for Discussion:
16 November 2017
NICE Developmental Follow Up Quality Standard
Notes of the 27 July 2016, see below.
Terms of Reference and Objectives, see above.
iNeo Collaboration Implications for our Network E-mail
iNeo Collaboration Editorial - Variation in Neonatal Care: Does it matter?
NICE Developmental Follow Up Guideline
Revised Network Follow Up Guideline
Key Point in New NICE Follow Up Guideline
NICE Quality Standard Development Timeframe
See above for Follow Up Parent Information Leaflets and Letter for Babies Born Out of Region
27 July 2016
Notes of the 26 November 2016, below.
Follow Up Assessment Parent/Carer Feedback
What NNU's Can do to Develop Immature Brains
26 November 2015
Notes (agreed 27-07-16)
Notes of the 12 December 2014, below.
NICE Scoping Document on Developmental Follow Up of Preterm Babies Guideline
12 December 2014
Notes (agreed 26-11-15)
Follow Up Assessment Parent/Carer Feedback
Follow Up DNA Parent/Carer Feedback
See Notes of the 29 May 2014, below.
29 October 2014 - CANCELLED
Notes of the 29 May 2014, below.
Bayley Presentation for AGM September 2014
29 May 2014
Notes (agreed 12-12-14)
Notes of the 5 July 2013, below.
Objectives 2013/14 Review of Progress
Objectives 2014/15, above.
5 July 2013
Notes (agreed 29-05-14)
Follow Up Assessment Parent Questionnaire
Follow Up DNA Parent Questionnaire
Notes of the 31 January 2013, see below.
Draft Parent/Carer Questionnaire, see below.
BLISS HV Booklet, see below.
31 January 2013
Notes (agreed on the 05-07-13)
Draft Parent/Carer Feedback Questionnaire
5 July 2012
Agenda (agreed on the 31-01-13)
26 January 2012
Notes (agreed on the 05-07-12)
9 March 2011
Notes (agreed on the 26-01-12)
Please see Terms of Reference and Objectives above
