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Uridine powder availability

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December 20. 2017
Laura Godden

Hi

We currently obtain Uridine powder for orotic aciduria from Audor Pharma via Mawdsleys unlicenced.  This is no longer available.  What do other centres use? 

Thanks in advance

Laura 

January 05. 2018
Adam Sutherland

Afraid not very helpful here - we have one patient who was on uridine who stopped taking it because of the flavour.  

August 14. 2018
Will Batten

Hi all,

Does anyone else know where uridine can be obtained from?  I know there is a US licensed product (Xuirden) but is very expensive!

Thanks,

Will

Bristol Royal Hospital for Children

August 14. 2018
Adam Sutherland

Hey all;

We recently had a sibling of the patient I referred to above.  We've gone back to the family and said that we can't obtain it anymore so we can't offer treatment.  We will not entertain importing Xuirden because of the cost and the zero-chance of NHS England funding the cohort.

A

December 01. 2020
Reena D Patel

hey guys - sorry to resurrect an old thread but wondering if anyone had any luck recently with Uridine?

Thanking you all in advance

Reena

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