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Mannose for CDG Ib

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November 30. 2017
Will Batten

Dear all,

Can anyone advise on where they obtain mannose for CDG Ib.  I have an old document that states Novo labs but they have denied this.  Does anyone have any information or advice?

Thanks,

Will

(Bristol Children's)

February 15. 2018
Will Batten

Hi All,

To save others searching for this in case this crops up again:

Mannose powder available from Special Labs (PCCA Ltd.).  Dose in Sauduvray.

Thanks,

Will

(Bristol Children's)

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