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Glycerol Phenylbutyrate

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March 09. 2017
Antonio Ochoa-Ferraro


Is anybody using, or has anyone used yet Glycerol Phenylbutyrate? It has an EMA license, but NICE seems to be still appraising it.

Kind regards


March 13. 2017
Will Batten

Hi Antonio,

I still don't think it is available in the UK yet.  June maybe?  Still waiting to hear the outcome from NICE/NHS England.  I went to the workshop last summer and was told we would be informed of developments but haven't heard anything!

I met with the SOBI (UK distributor) rep today and she was going to get a funding update for me so I will let you know any updates.



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