Glycerol Phenylbutyrate
Up to Metabolic Pharmacists Forum
March 09. 2017
Antonio Ochoa-Ferraro
Hello,
Is anybody using, or has anyone used yet Glycerol Phenylbutyrate? It has an EMA license, but NICE seems to be still appraising it.
Kind regards
Antonio
March 13. 2017
Will Batten
Hi Antonio,
I still don't think it is available in the UK yet. June maybe? Still waiting to hear the outcome from NICE/NHS England. I went to the workshop last summer and was told we would be informed of developments but haven't heard anything!
I met with the SOBI (UK distributor) rep today and she was going to get a funding update for me so I will let you know any updates.
Thanks,
Will
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