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Metabolic Pharmacists Group

For pharmacists from all disciplines to come together and share practice, knowledge and experience in the field of metabolic diseases
For pharmacists from all disciplines to come together and share practice, knowledge and experience in the field of metabolic diseases (less...)

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Use of thickening agents for meds
Hi, Wondering if anyone has experience of adding a thickener to arginine liquid and/or sodium benzoate liquid to aid swallowing? Any thoughts appreciated. Thanks, Martina, Aberdeen.  
16:26 - Wed 03 Oct 2018
Re: Uridine powder availability
Hey all; We recently had a sibling of the patient I referred to above.  We've gone back to the family and said that we can't obtain it anymore so we...
15:06 - Tue 14 Aug 2018
Galactose
Hi all, Does anybody know where I can obtain galactose from?  I'm thinking it only comes as a powder Thanks, Will Bristol Royal Hospital for Children
14:50 - Tue 14 Aug 2018
Re: Uridine powder availability
Hi all, Does anyone else know where uridine can be obtained from?  I know there is a US licensed product (Xuirden) but is very expensive! Thanks, Will Bristol Royal Hospital...
14:45 - Tue 14 Aug 2018
Nitisinone & Meds Optimisation CQUIN
Hi all, Our medicines optimisation CQUIN for 2018 includes using generic nitisinone (Nityr).  Currently, Nityr is licensed in the UK but only available in the UK as 10 mg and...
15:02 - Tue 24 Jul 2018
IV Thiamine
Hi all,   We may need to use IV thiamine in a patient on our NICU.  I’m not directly involved, so not totally clear on the working diagnosis.    Does...
12:15 - Fri 13 Apr 2018
Re: l-Serine
PS. Glycine we get from the Specials Labs (PCCA) packed down into sachets.  You may also need to use this as we added this into our previous patient (and you...
08:33 - Tue 03 Apr 2018
Re: l-Serine
Hi Adam, We use L-serine (100 gram tubs) from Nutricia and dose using the calibrated scoops (attached).  Hope this helps. Will Bristol Children's
08:31 - Tue 03 Apr 2018
l-Serine
Hey all;   Anyone have a source of l-serine for serine deficiency disorders?  All I can get are raw chemicals.   A
19:59 - Sun 01 Apr 2018
Re: iv metabolic drugs and potassium
Hi Laura, Like you we recommend potassium being given via another line here in Bristol.  Metabolic meds (SB, SP, Arginine) given via same lumen via Y-site in 10 % glucose. Also interested...
14:42 - Thu 15 Feb 2018