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38 members Apply to join Network contact: Adam Sutherland

Metabolic Pharmacists Group

For pharmacists from all disciplines to come together and share practice, knowledge and experience in the field of metabolic diseases
For pharmacists from all disciplines to come together and share practice, knowledge and experience in the field of metabolic diseases (less...)

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IV Thiamine
Hi all,   We may need to use IV thiamine in a patient on our NICU.  I’m not directly involved, so not totally clear on the working diagnosis.    Does...
12:15 - Fri 13 Apr 2018
Re: l-Serine
PS. Glycine we get from the Specials Labs (PCCA) packed down into sachets.  You may also need to use this as we added this into our previous patient (and you...
08:33 - Tue 03 Apr 2018
Re: l-Serine
Hi Adam, We use L-serine (100 gram tubs) from Nutricia and dose using the calibrated scoops (attached).  Hope this helps. Will Bristol Children's
08:31 - Tue 03 Apr 2018
l-Serine
Hey all;   Anyone have a source of l-serine for serine deficiency disorders?  All I can get are raw chemicals.   A
19:59 - Sun 01 Apr 2018
Re: iv metabolic drugs and potassium
Hi Laura, Like you we recommend potassium being given via another line here in Bristol.  Metabolic meds (SB, SP, Arginine) given via same lumen via Y-site in 10 % glucose. Also interested...
14:42 - Thu 15 Feb 2018
Re: Mannose for CDG Ib
Hi All, To save others searching for this in case this crops up again: Mannose powder available from Special Labs (PCCA Ltd.).  Dose in Sauduvray. Thanks, Will (Bristol Children's)
14:36 - Thu 15 Feb 2018
Re: BIMDG Pharmacist subgroup meeting- SAVE THE DATE
Dear all, Please find attached draft agenda/programme for the BIMDG pharmacist study morning that will take place the morning of Thursday 21 st June 2018 at East Midlands Conference Centre,...
12:06 - Thu 15 Feb 2018
iv metabolic drugs and potassium
Hi Does anybody have any experience infusing potassium alongside sodium phenylbutyrate, sodium benzoate and arginine? We always recommend getting another line in to run the potassium separately with the metabolic drugs...
16:17 - Thu 08 Feb 2018
Re: Riboflavin 5'-phosphate
Thanks Adam - that's saved me a lot of work. Karen
12:29 - Wed 17 Jan 2018
Re: Riboflavin 5'-phosphate
Hi Karen; We buy from Martindale Pharmaceuticals.  250mg in 5ml, 500ml costs about £150. 30 day expiry.  A 
17:23 - Tue 16 Jan 2018