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Improving care and support in advanced COPD Recommendations from the Living with Breathlessness study – Dissemination Events

 

Improving care and support in advanced COPD Recommendations from the Living with Breathlessness study – Dissemination Events

Two free dissemination events to present the six key recommendations, their related actions points, and the implications for stakeholders working with those with advanced COPD are being held in London and in Cambridge

What
When Nov 15, 2016 from 11:40 AM to 11:40 AM
Contact Name
Attendees stakeholders working with those with advanced COPD
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Chronic obstructive pulmonary disease (COPD) is a progressive condition with a high symptom burden and significant informal carer burden. COPD accounts for one death every 20 minutes in England and Wales. National strategy states that quality end of life care should be available to patients with any condition, yet we rely on planning tools developed for cancer which are inappropriate. Our limited knowledge of trajectories of support needs and care preferences in advanced COPD has created uncertainty in the timing and type of supportive interventions.


Funded by Marie Curie and NIHR, the Living with Breathlessness Study collected mixed method longitudinal evidence on experiences and outcomes of care and support from multiple perspectives. Working with a population-based cohort of over 500 patients, informal carers and health care professionals, this extensive programme sought to identify a new model for care and support in advanced COPD. The findings informed six recommendations, underpinned by action points, and linked by the concept of proactive person-centred care. Person-centred care is not a new concept, but the recommendations, grounded in patients’ and carers’ experiences, are novel in suggesting how it can be enabled within the existing health system.

 

Two free dissemination events to present the six key recommendations, their related actions points, and the implications for stakeholders working with those with advanced COPD are being held in London and in Cambridge
Please book the event via EventBrite (booking essential) using the below links or email lm462@medschl.cam.ac.uk to be sent links:
1. Cambridge event on Tues 15th November 2016, from 1230pm to 2pm (lunch provided) at the Cambridge Institute of Public Health: http://bit.ly/2e8MWpR

2. London event on Wed 23rd November 2016, from 3:30pm to 5pm (light refreshments provided) at the Royal College of General Practitioners (RCGP): http://bit.ly/2e0jnKu

More information about this event…