Parents and Carers
The East of England Neonatal ODN are committed to ensuring that families are involved in all care that their babies receive and are provided with clear and consistent information and support. Working with our Parent Advisory Group, we will continue to develop our work plan to ensure that the family are always at the heart of everything that we do.
To visit each organisation's website click on the image on the left hand side.
For the parent passport please click here.
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Parent Advisory Group:The Parent Advisory Group (PAG) is a group of parents/carers who have used neonatal services in the past. The group represents the views and experiences of parents and families whose babies have been cared for in a neonatal unit and play a vital role in driving forward improvements and changes in neonatal care in the region. For more information including finding out how to become a PAG member, please contact the EoE ODN team at EoENeonatalPAG@gmail.com |
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Best Beginnings have links to various pages that are useful for all new parents and carers. There are also links to to helpful pages for parents with premature and sick babies. |
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Bliss aim to help babies and their parents at all stages of their journey.
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Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement. |
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Cleft Lip and Palate Association (CLAPA) is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. They also have a special parent zone, with information for parents. |
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Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. |
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Down's Syndrome Association have a page dedicated to information for new parents including downloadable parents packs. For the parent page click here. |
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La Leche League GB help answer any questions new parents have about breastfeeding. |
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Medicines for Children - Practical and reliable advice about giving medicine to your child. |
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National Childbirth Trust provide information and courses for parents. Visit their parent page here. |
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Petals provide a specialised counselling service in Cambridgeshire and the surrounding areas for grief-stricken parents. |
| Stillbirth and Neonatal Death charity (SANDS) supports anyone who has been affected by the death of a baby before, during or shortly after birth. With special help for parents here. | |
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Scope provide support and information for parents of children with a physical impairment, learning disability or any other condition. |
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Twins and Multiple Births Association (TAMBA) help parents through all stages of their childrens life, including during pregnancy. |
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Together for Short Lives is the leading UK charity that speaks for all children with life-threatening and life limiting conditions and all those who love and care for them. |
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UNICEF - The Baby Friendly Initiative is designed to support breastfeeding and parent infant relationships by working with public services to improve standards of care. |
