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UK strategy for rare diseases: 2020 update to the implementation plan for England

 

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UK strategy for rare diseases: 2020 update to the implementation plan for England

This paper contains a summary of the strategy's progress and actions for the government and partner organisations for 2020.

It covers five main areas: empowering those affected by rare diseases, identifying and preventing rare diseases, diagnosis and early intervention, co-ordination of care, and the role of research. More....