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Second progress report from rare diseases policy board

 

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Second progress report from rare diseases policy board

The UK Rare Disease Policy Board has published a second progress report following publication of the UK strategy for rare diseases in 2013.

The UK Rare Disease Policy Board has published a second progress report following publication of the UK strategy for rare diseases in 2013. The strategy is an effort by all four health departments in the UK to recognise and respond to the needs of those affected by rare diseases. It highlights achievements from across the four nations since the first progress report in 2016 and discusses UK-wide opportunities and challenges up to 2020.