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NHS to fund treatment for sufferers of rare inflammatory disorder

 

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NHS to fund treatment for sufferers of rare inflammatory disorder

NHS England is to fund a treatment for people with rare conditions causing repeated bouts of fever, joint pains and swelling, in an effort to help a small group of people who suffer life-limiting symptoms.

Periodic fever syndromes (PFS) are a group of rare genetic conditions where the person’s immune system overreacts, resulting in frequent inflammation ‘flares’, involving chest or joint pains, headaches, mouth ulcers and skin rash. The NHS has confirmed that it will make available the drug canakinumab which modifies the immune system, turning off the inflammation process and significantly reducing symptoms.