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Rare disease group seeks patients


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Rare disease group seeks patients

NHS England is advertising for patient and public voice (PPV) representatives to join two senior clinical advisory groups.

The Clinical Priorities Advisory Group (CPAG) is seeking four PPV members to join this NHS England Board sub-committee. Its scope includes all directly commissioned services of NHS England.

The Group’s core role is to make formal recommendations to NHS England’s Board on the commissioning of services where there could be a substantial change in service provision.

A United Kingdom Rare Diseases Advisory Group (RDAG) is being formed to make recommendations to NHS England, NHS Scotland, NHS Wales and NHS Northern Ireland (to be confirmed) about which highly specialised services or technologies should be considered for investment. More ....