151,065 members

Skip to content. | Skip to navigation

Blog

Cancer Care Map

 

Blog headlines

  • Reading Well for young people consultation
    14 October 2021

    The blog this week is from Reading Well. They support people to understand and manage their health and wellbeing using helpful reading.

  • Special school eye care service
    7 October 2021

    This week we are sharing an article on improving eyecare services for children and young people with learning disabilities and/or autism who are 28 times more likely to have a sight problem. This piece explores how a service has been developed to improve outcomes for these children.

  • Using P-D-S-A, patients can take control of their own health & wellbeing trajectories
    30 September 2021

    This week we are sharing how patients in partnership with the NHS can self-manage long term conditions. Improvement science methodology has enabled Julian Simcox, a patient leader in North Somerset to develop a personalised care approach to support him to manage his long term conditions.

  • Chronic Low Back Pain Phase I (FIH) Clinical Trial at NHS sites
    23 September 2021

    For networks this week we are sharing information about a clinical trial at NHS sites, the first part of the trial has just been completed – at two NHS sites during the pandemic.

  • ‘There is nothing so practical as a good theory’
    16 September 2021

    The Networks blog this week comes from the Staff College: Leadership in Healthcare (Staff College) is a national charity dedicated to promoting great leadership for the public good.

  • Reflections on a ‘new’ NHS and its impact on general practice
    10 September 2021

    This week’s blog we are sharing reflections by William Greenwood on the direction for the health service and potential impact on general practice.

  • When facilitation could turn into mediation
    3 September 2021

    Requests to attend a meeting, to help find a way forward, to help with planning, to redesign a care pathway, and numerous other reasons are not always what they seem. Sometimes you will be asked to facilitate, or just asked to attend. What then happens in the room may not be the meeting that you are expecting. Other situations, such as tensions between practices, departments or teams may give a more obvious sign that what is needed goes beyond just attending or facilitating a little.

  • Population Health Management?
    26 August 2021

    One of the frequently heard phrases of the moment is population health management – but what is it and does it work. The blog is from a longer article by Monica Duncan exploring the topic.

  • The future must be primary care
    19 August 2021

    The blog this week is by Professor David Colin-Thomé, chair of PCC.

  • Preparing for winter 2021/22
    13 August 2021

    One of the hottest days of the year saw people from practices, primary care networks (PCNs) and federations gather to start to think creatively about managing their winter pressures in this session hosted by PCC and the NHS Confederation PCN Network.

  • Building the collaboration
    5 August 2021

    Prior to COVID-19 primary care network (PCN) community pharmacy leads (representing a group of pharmacy contractors in their locality) were starting to contact the clinical director for their allocated PCN to discuss how pharmacy services could develop and adapt to help address community health needs.

  • Audit into action… with a pandemic thrown into the mix!
    29 July 2021

    A blog from the Clinical Leads for the National Audit of Care at the End of Life (NACEL).

  • GP partnership uses new video to highlight benefits of its merger-led transformation
    23 July 2021

    An East Cheshire-based GP practice, the Middlewood Partnership, which formally merged in order to successfully transform its clinical and business models, is sharing insights, via a new video, with colleagues across the health and social care sector.

  • Early evaluation of the Children and Young People’s Mental Health Trailblazer
    15 July 2021

    The Birmingham, RAND and Cambridge Evaluation Centre (BRACE) is funded by the National Institute for Health Research to conduct rapid evaluation of promising new services and innovations in health and social care. The BRACE Rapid Evaluation Centre and Policy Innovation and Evaluation Research Unit have published findings from the early evaluation of the Children and Young People’s Mental Health Trailblazer programme.

  • Learn from reflection
    8 July 2021

    We are sharing an article by Helen Northall, chief executive, PCC this week on learning from reflection.

  • Link of the week: National Thank You Day
    1 July 2021

    This week we are featuring National Thank You Day.

  • North East Essex integrated discharge single point of access - implementing the Coronavirus Act 2020 and Covid-19 hospital discharge service requirements
    24 June 2021

    The blog this week is from Frank Sims, chief executive of Anglian Community Enterprise and shares learning on collaboration and redesign to support hospital discharge.

  • Helping your patients making an informed choice: Medical or Surgical abortion?
    17 June 2021

    This week the blog has been submitted by MSI Reproductive Choices UK and is about supporting patients to make an informed choice based on NICE guidance.

  • The potential for case finding patients with cardiovascular disease in a dental setting
    10 June 2021

    The blog this week is by Wendy Crew, PCC adviser, considering the opportunity to case find patients with cardiovascular disease in a dental setting.

  • Using population health data to inform ARRS recruitment
    3 June 2021

    Funding for the additional role reimbursement scheme (ARRS) has increased nationally from £430m (2020-21) to £746m max. (2021-22) with an allocation available for each primary care network (PCN) depending on the size of the population it covers. Clinical commissioning groups (CCGs) draw down the funds but only as new roles are recruited within PCNs. PCNs are therefore being strongly encouraged to make use of their ARRS allocation to ensure people in their neighbourhoods benefit from the funding available.

 
 
Thursday, 20 May 2021

Cancer Care Map

The blog this week has been submitted by Robin Pritchard, co-director of Cancer Care Map. Cancer Care Map is a stand-alone, comprehensive, independent, free to use online directory of cancer support services in the UK providing verified and trusted information, regularly checked and updated and accessible to all.

Cancer Care Map

It’s been 3 years since the pilot launch of www.cancercaremap.org in 2018. A lot has happened in that time, not only to the delivery of cancer care, but to the world as we know it, and support services in the UK have found new ways to adapt to the world we now find ourselves in.

Co-director, Robin Pritchard explains how the project came about and their plans for 2021.

“The original idea for Cancer Care Map came from broadcaster Jonathan Dimbleby, Chair of The Richard Dimbleby Cancer Fund. Our work at the time was focussed predominantly on the Dimbleby Cancer Care services at Guy’s Cancer Centre, but we were always asked by people how they could find out about what support services were available near them. We commissioned some research to look into this with Guy’s and St Thomas’, and also begin to map services in the wider local area. What we found was that there was no comprehensive central place to go to find out about cancer care in the UK. There are directories of support services for specific tumour groups or run by other charities to signpost their own services, but we couldn’t find anything that showed you everything that was available to you solely focussed on cancer support. And if you just went to ‘Google’ it was hard to know where to start, or if the information you came across was up to date or was giving safe, trusted advice. So that’s where Cancer Care Map came from: we wanted to create a comprehensive, free to access, trusted directory of cancer care services in the UK – not just the well-known information centres like Maggie’s and Macmillan, both of whom we now work closely with, but all the amazing community and smaller charity-led organisations operating all around the country, providing care and support not just to those diagnosed with cancer but the families and carers supporting them.

We carried out a series of workshops with patients, carers and GPs to find out what they wanted and launched the pilot site in 2018. We then went live with the full site two years ago on #WorldCancerDay 2019.

The biggest impact on cancer care and the cancer community in that time has of course been COVID-19 – not only the virus itself but the knock-on effects of isolation and delayed cancer treatments. When the first lockdown happened in March 2020, many cancer support centres had to close their doors. That meant all that face-to-face support that is so important to people living with cancer suddenly stopped. People who were going through treatment had to shield and isolate. To many people going through treatment or living with cancer, the information centres and counselling sessions and support groups are their lifelines. Cancer didn’t go away, and all those feelings of anxiety and isolation were only heightened by the pandemic. So organisations very quickly adapted what they were doing. All the many helplines and online support services already out there really came into their own, and other services moved their support to reach people virtually through phone calls, Zoom and video calls, chatrooms and even virtual exercise and group classes.

It’s meant that many cancer care organisations can now connect with people further afield than their local area. Organisations have worked incredibly hard to keep services running, opening centres for face-to-face support when they could to those most in need, and ensuring that those isolating at home still felt connected. And people have really embraced online and virtual support like never before. Social media often gets bad press, but there are some wonderful online communities out there helping people through really difficult times. Cancer Care Map has been able to bring all this information together to connect people with the kind of support they may not have even realised it out there.

As things begin to open up again in summer 2021 it will be so good to see support centres opening up and face to face support able to happen again. But many of the new ways of connecting with people virtually will continue. It’s a new way of reaching people and supporting them when they need it most.

When we first launched the site, we had 150 organisations on the map. Today we have over 2,300 and are adding more each week. We are working with NHS healthcare trusts across the country to ensure we have all the services in their local area on the map. Once information is listed on Cancer Care Map, we make sure it is updated regularly – and with services adapting their support as lockdown rules have changed over the last year, this is really important. At the moment we are able to ensure everything is checked every 3-6 months and we hope to move this to every 3 months over the coming year.

We’ve been lucky enough to have been able to work right the way through since last March. We’re a small core team of three and began working from home straight away. As we’ve secured more funding over the last 12 months, we were able to expand the team and, in the summer, began working with additional content editors.

We’ve also been working with a digital company called AND Digital who have developed a brand-new version of the site. They’ve done all the work pro bono, despite the challenges of the last year, and we launched the new platform in March this year. We’re really excited. Our aim is to continue to grow Cancer Care Map and ensure that anyone in the UK affected by cancer knows that we are here to help them find the support they need.

And so when you have a patient in front of you, whether they are living with cancer themselves or are supporting someone who is, by pointing them in the direction of Cancer Care Map you can be confident that they will find help they can trust, information that is up to date, and hopefully support that they didn’t even know was available to them.”

Cancer Care Map is a stand-alone, comprehensive, independent, free to use online directory of cancer support services in the UK providing verified and trusted information, regularly checked and updated and accessible to all.

  • Find information on support for families, loved ones and carers as well as those living with cancer themselves
  • Cancer Care Map is collaborating with organisations across the UK including charities, NHS services, private practice and support groups
  • All information is checked and verified by our team
  • Listings are updated every 3-6 months to ensure details are correct
  • Find psychological and emotional support, health and wellbeing services, and practical help wherever you are in the UK.