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People with learning disabilities are 58 times more likely to die before the age of 50 than members of the general population.
This is one of the stark facts in a support pack for PCTs launched to support the clinical directed enhanced service (DES) on learning disabilities.
Those with learning disabilities tend to have other health problems. For instance, the incidence of epilepsy is a startling 22 times higher than in the rest of the population.
Other problems are acquired: because they are less likely to use screening services, for example, people with learning disabilities are more likely to fall prey to avoidable conditions. And because they are harder to reach through health education, preventative strategies are also less effective.
Learning disability creates a range of challenges for those responsible for design and delivery of health services, from directors of commissioning to local healthcare professionals.
Expect to see this subject feature more prominently as national health policy comes to terms with Death by Indifference, the 2007 Mencap report, which exposed the inadequacy of existing arrangements and called for urgent measures to improve support and care management.
Learning disability challenges health and social care professionals at all levels to stop merely talking and start collaborating. It places new demands on primary care commissioners working with their colleagues in social care to co-design services and prove that they work by building effective monitoring and measurement into the service specification.
We may even see this addressed directly in the world class commissioning assurance programme, which will mean that PCTs that fail to act will be called to account.
There are the usual economic reasons for addressing this issue. People with learning disabilities make higher than average demands on healthcare services. They are almost twice as likely to spend time in hospital, for example.
A more compelling argument is the quality of life of the one and a half million people directly affected and the many more indirectly affected: their carers and families.
But there is a wider benefit in getting this right. There is no tougher test of the healthcare community's imagination, compassion and ingenuity in delivering services that meet individual need. Strategies that work for this group will work for us all.
> > NHS Networks has seven networks devoted to different aspects of this subject, but more are always welcome, particularly those able to deliver a coherent, partnership based approach and share learning and good practice. We are happy to work with existing local and national networks, whether or not they are currently registered with us, and look forward to hearing from you.
The next New@Networks will be sent out on 26 February.
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