Patient and Public Involvement (PPI)
PPI networks in the NHS Networks Register
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Cancer Patient Information
The network now supports over 800 members - all with an interest in producing and providing accessible, high quality and comprehensive packages of patient information. Members work for a range of national and local statutory and non-statutory organisations. -
Community Health Involvement & Empowerment Forum - CHIEF
Aims to provide community members with up-to-date health information, impartial advice, emotional support and advocacy service to help reduce health inequalities in England & Wales. -
Engaging Communities
The Engaging Communities Learning Network (ECLN) has been helping Primary Care Trusts (PCTs) engage with local people and front line staff since spring 2001. -
Expert Patients Programme
Supports EPP Co-ordinators by sharing information and good practice. -
National PALS Network
A not-for-profit company that brings together the Patient Advice and Liaison Services (PALS) of the NHS. -
North West Community Involvement Network
An informal group of individuals working in the North West linked by a shared enthusiasm of community engagement and patient and public involvement in health services. -
PALS in Trent
Supports PALS officers on both operational and strategic issues by sharing information and good practice and gathering themes, producing standardised procedures and supporting joint training.
Useful PPI links and downloads
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PPI Specialist Library
A comprehensive collection of current knowledge and evidence about patient and public involvement in healthcare, run by the King’s Fund for the National Library for Health. -
Toolkit for Involving Patients and the Public (PDF, 1.3MB)
Produced by Lambeth PCT, this throughly researched and clearly presented document looks at what PPI is, why it's important, how patients views can be gather and how they can be used. Please direct any feedback or comments on this document to daisy.camiwet@lambethpct.nhs.uk -
Lost in Translation (PDF, 464KB)
Report on the disparity between public perception of the NHS and patient approval. Published by the NHS Confederation in September 2006. -
Effective Practice-Based Commissioning: Engaging with local people The NHS Alliance, working with Developing Patient Partnerships (DPP) and the National Association for Patient Participation, have produced this useful document which draws on a number of surveys of professionals and patients to explore connections between PPI and Practice Based Commissioning.
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Commission for Patient and Public Involvement in Health (CPPIH)
An independent, non-departmental public body, sponsored by the Department of Health, which ensures that the public is involved in decision making about health and health services in England.-
PPI Forums annual reviews summary 2004-05 (PDF, 435KB)
Published by the CPPIH.
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DPP: Developing Patient Partnerships
The UK health education charity working with primary care organisations and the public to make the most of healthcare services. -
Involve
Promoting public involvement in NHS, public health and social care research